Thursday, June 21, 2007

Tattle tail

Tattle Tailing...

Yes, that is what I feel like we did. We tattled tailed. We met with his regular doctor, and told him how we just didn't feel like the hep docs were on our side. That they just didn't give us the warm fuzzies. How every time we leave San Antonio, we feel hopeless, and lost. At least his doctor gives us some hope that he will get through this. He said he would talk to them, and see if he can't arrange for us to meet with one doc every time we gone from now on. We shall see....

Big Bird isn't feeling so hot. The itching got REALLY bad yesterday. They called in a script for an antihistamine and at about 5:30 this morning it knocked him out, it has helped a wee bit, but he has scratched himself raw and drawn blood in a few spots. Took him in this morning for lab work-we shall see if it reveals anything. I am not convinced that blood work tells the whole story-but again I am not a medical expert, just the one that lives with Big Bird. The fatigue is really bad, probably worse than normal-too bad he can't sleep-I get tired just looking at him.

But, my last few posts have been a bit of a downer, we haven't lost our sense of humor I assure you-it is in tack and in full use in our house. In the sick and twisted way we are, he complains he doesn't feel good, I tell him he is just fine, after all his MELD is only 19.....(again sick and twisted).

We had to take a Transplant Education Class last week, one of the things it says, you can't have Grapefruit, or Pepper after transplant. But the most disturbing, you can't allow your pets to sleep with you after transplant. Good luck explaining that one to my dogs-whom all believe he is a giant pillow to maul and snuggle in the afternoon. I will let him explain it to their pouty little faces, he can have 4 puppy heads staring at him in wonder as to why, WHY they can't maul and snuggle. Yeah, that is gonna work out well...

No comments:

***BREAKING NEWS- Big Bird had his Liver Transplant on Wednesday December 12, 2007***

Adventures in Big Bird's Liver World is an account of the daily adventures, trials, frustrations and workings of living with PSC. My brother, aka Big Bird, was diagnosed with PSC in 2000, after battleing UC for many years. He was listed for a transplant in May 2007. We now await the infamous "call". In the mean time, this is where we vent, poise questions and ramble about life, doctor appointments, illness, good days & bad days.