On Sunday, Big Bird was released. After a second liver biopsy, it was determined that he was in full blown liver rejection.
We believe the rejection started with a UC flare two weeks ago. Anyone who has any knowledge of UC or any type of IBS will understand that when you have an active flare, things tend to go right through you. So, this is what we think may have happened to his anti-rejection medication.
The rejection was diagnosed on Friday morning. They immediately started him on IV steroids and Thymogobulin. His bili got up to 18, and his liver numbers were steadily climbing. Migraines were also an issue along with nausea. By Saturday, we started to see some improvement in liver numbers. Sundays' blood tests had his bili down to 14-so after his 4-hour Thymogobulin drip he was discharged. He has to go back to clinic on Tuesday, more blood tests and another 4-hour Thymogobulin drip. They may even repeat the IV drip Thursday and Monday depending on blood work.
There was some liver damage, but since the liver is a remarkable organ, they are hopeful that with turning the rejection around that it will self correct.
So, we keep are fingers crossed that we are indeed on the road to recovery.
1 comment:
Hi,
I have the same disease that Big Bird had. I have read how psc can come back in some cases. I am hopeful that this is not the case as big bird. Even though I have never met him, I am rooting for him. I sincerely hope that he is going to be okay. This disease can be very debilitating. He is in my prayers every night.
Thank you for keeping us updated...
Trevor
cnbougey431@hotmail.com
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