Showing posts with label meds. Show all posts
Showing posts with label meds. Show all posts

Friday, June 12, 2009

FDA Alert




My trusty Yahoo PSC group set in the latest FDA alert. It just happens to be on Rapamune. The anti-rejection medication they had switched Big Bird to back in February. Apparently it has caused issues in kidney patients that were switched from some other anti-rejection to Rapamune.


If you are taking another anti-rejection medication and your doctors want to switch you, PLEASE question them until all your concerns are answered.


You can read the full FDA alert here.
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***BREAKING NEWS- Big Bird had his Liver Transplant on Wednesday December 12, 2007***

Adventures in Big Bird's Liver World is an account of the daily adventures, trials, frustrations and workings of living with PSC. My brother, aka Big Bird, was diagnosed with PSC in 2000, after battleing UC for many years. He was listed for a transplant in May 2007. We now await the infamous "call". In the mean time, this is where we vent, poise questions and ramble about life, doctor appointments, illness, good days & bad days.