Tuesday, August 14, 2007

We are #1

Well it is official we are having a bout of cholangitis. Oh the remarkable joys. He is on a pain pump now to hopefully help control the pain-we shall see.

It was the INR that was throwing loops this morning. It was 6, it is now 3.36, still high, but better.

But with this latest development and the INR numbers we found out this afternoon that he has officially been bumped to #1 on the transplant list for his blood type at his center. Scary news...

I have the RS president coordinating with the bishopric to get someone down here to get a blessing so hopefully that will be happening this evening.

That is the latest from the deluxe ICU suite....will let ya know more when I can.

2 comments:

Anonymous said...

#1 is very good. Hang in there, it won't be long now and I know Dustin will feel so much better once he gets that new liver and kisses PSC goodbye - forever.

Relax Mom & Sis, ICU is a great place to be, he'll get the very best care there and you can rest up for the busy days sure to follow.

Good luck and best wishes, we'll be praying for a super new liver and a speedy carefree recovery.

Barb & Ken in Texas

Katie said...

I hope he got his blessing. When I talked to Betty this afternoon, she was going to be calling the Bishopric to make sure he got one. You know you can always call us too.
I'm so glad you've got great people, taking great care of him!!

***BREAKING NEWS- Big Bird had his Liver Transplant on Wednesday December 12, 2007***

Adventures in Big Bird's Liver World is an account of the daily adventures, trials, frustrations and workings of living with PSC. My brother, aka Big Bird, was diagnosed with PSC in 2000, after battleing UC for many years. He was listed for a transplant in May 2007. We now await the infamous "call". In the mean time, this is where we vent, poise questions and ramble about life, doctor appointments, illness, good days & bad days.