Friday, January 12, 2007

Happy New Year

Happy New Year! Everyone. I hope this year finds all of our friends and family, peace, hope, charity, love and prosperous.

We are in the home stretch of Big Bird receiving Medicare Benefits. December was a CRAZY month. Lots of forms to fill out. I am truly amazed at how difficult they make signing up for Medicare. Because, you don't just sign up for Medicare, there is Medicare Part A, then Medicare Part B, then Medicare Part D, then you go into supplemental insurance, blah blah blah. It is completely overwhelming, then I challenge you to try and find someone that works in one of the government offices with apathy and sympathy for what you are trying to figure out. They do exist, I managed to find one or two. Cherish them if you find them, because those one or two out there, can enlighten you to programs you kick yourself for not learning about earlier.

We learned about programs such as SLMB, QI-1. Big Bird qualifies for both of them, but was only approved for SLMB. We will take this, as it will help cover the Medicare Part B fees. Know we anxiously await response to his application for assistance for Medicare Part D. It is under review. Regardless of the fact that, that was the VERY FIRST application we ever submitted. His Medicare Coverage is affective February 1, 2007. YIPPIEE!!!!!!!

He is STABLE. This we are very thankful for! We do hope this trend continues. We have a follow up appointment for the last blood draw next week.

Now that Medicare is kicking into affect-we patiently await to here about referral to the Transplant Hospital for evaluation. Stomachs have been turning, sleep has been disturbed. Fear, Hope, Restlessness, Eagerness, Anticipation. Those can about sum up some of the feelings that go through our minds.

Well, I just thought that I would post the lasted on Big Bird. He is still alive and kicking. He (along with our cousin and myself-I am sadly to report-anxiously awaiting the release of World of Warcraft Burning Crusades- this is to happen next week-so we will be tide to our puters in our little fantasy land).

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***BREAKING NEWS- Big Bird had his Liver Transplant on Wednesday December 12, 2007***

Adventures in Big Bird's Liver World is an account of the daily adventures, trials, frustrations and workings of living with PSC. My brother, aka Big Bird, was diagnosed with PSC in 2000, after battleing UC for many years. He was listed for a transplant in May 2007. We now await the infamous "call". In the mean time, this is where we vent, poise questions and ramble about life, doctor appointments, illness, good days & bad days.