Well, yesterday morning Big Bird's doctor called, the antibiotics are working Yippeeeeee!!! His bili was down from 25.2 on Tuesday (1/23) to 16! Good news. His doctor also said that he could post pone the ERCP that was scheduled for tomorrow until after Transplant Evaluation-so of course he did! Hopefully the Transplant hospital will call soon. Medicare if effective tomorrow. HOORAY!!!! This is so exciting. Some anxiety of him getting sick will be removed-because at least now he can get the medical attention he needs without the added stress of money being the issue.
There is an organization that is focused on bring research and attention to PSC-the liver disease which affects Big Bird, PSCPartners Seeking a Cure, they are sponsoring a virtual walk, you can register at www.pscpartners.org. It is $25.00 to register, they send you a T-shirt, a pen, envelope you collect signatures and monies-then send it back to them, they will display it at the conference in April. We won't be there, but I think it is still a worth while cause and one that actually goes directly to a disease that gets little funding as it is! So if you can-help out and register!
I will post as soon as we have transplant eval dates!
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