Wednesday, January 24, 2007

Fevers

So, Big Bird woke up at 3AM with a fever at 6am it was 100.01, at 6:30am is was 100.04, at 6:35am we take alieve, got the fever down (wooohooo). Called his doctors office, they had him in for STAT blood work......

We got the blood work results back (of course they came back when I wasn't home so I didn't get them all) but my brother total bili came back at 25. He has been feeling "fine". A little anti-social but fine, considering-he has been stressed with all this waiting and anticipation that Medicare takes effect next week.

Well his doctor is not real thrilled with the bili count-it is the highest it has ever been. He is wanting to do an ERCP (knowing that the last ERCP done in Feb. 2005 he told us that stenting was no longer an option do to scarring). I just don't know what to think of the latest bili lvl. I really wish I had the other blood results-when I talked to the nurse this morning, she didn't have his chart just orders to get an ERCP schedule that his doc has his chart....

Do I worry, I don't know I ARGGGGGGGGGG

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***BREAKING NEWS- Big Bird had his Liver Transplant on Wednesday December 12, 2007***

Adventures in Big Bird's Liver World is an account of the daily adventures, trials, frustrations and workings of living with PSC. My brother, aka Big Bird, was diagnosed with PSC in 2000, after battleing UC for many years. He was listed for a transplant in May 2007. We now await the infamous "call". In the mean time, this is where we vent, poise questions and ramble about life, doctor appointments, illness, good days & bad days.