Tuesday, July 10, 2007

FALSE ALARM

THIS HAS BEEN A TEST OF THE DUSTIN EMERGENCY BROADCASTING SYSTEM!

We just spoke with Big Bird's nurse coordinator and the liver didn't come through. They think it went to another hospital-so hopefully it is a good match for that recipient.

This has truly been a test on preparedness for all of us. We were able to get him a blessing this morning, and that brought comfort. We certainly now know what we need to do to prepare.

His MELD is still 19, but apparently it isn't a very long list at this hospital, so he is right on up there.

Time to resume normal life, and certainly a time to reflect on what we need to take care of.
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***BREAKING NEWS- Big Bird had his Liver Transplant on Wednesday December 12, 2007***

Adventures in Big Bird's Liver World is an account of the daily adventures, trials, frustrations and workings of living with PSC. My brother, aka Big Bird, was diagnosed with PSC in 2000, after battleing UC for many years. He was listed for a transplant in May 2007. We now await the infamous "call". In the mean time, this is where we vent, poise questions and ramble about life, doctor appointments, illness, good days & bad days.