Saturday, July 28, 2007

Update

Friday we went to San Antonio again and met with the hepatologist. He was very nice this round. He expressed concern and hope actually. This was a first since we have been going since April.

He concluded that the ERCP they did on July 20 showed that his best option at this point is transplantation. They did put a stent in, but it seems to be causing some discomfort. They also found a hernia in his abdomen. The hernia will be fixed during the transplant surgery. They redid all his blood work, and he came back with a MELD score of 23. This is a point higher than his score from a couple weeks ago. His hep is hopeful that he will be transplanted soon. He has moved up on the list but he couldn't give an official listing status. The person that was ahead of him received a transplant on Friday...so it is possible that he could be #2 or #1.
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***BREAKING NEWS- Big Bird had his Liver Transplant on Wednesday December 12, 2007***

Adventures in Big Bird's Liver World is an account of the daily adventures, trials, frustrations and workings of living with PSC. My brother, aka Big Bird, was diagnosed with PSC in 2000, after battleing UC for many years. He was listed for a transplant in May 2007. We now await the infamous "call". In the mean time, this is where we vent, poise questions and ramble about life, doctor appointments, illness, good days & bad days.