Tuesday, July 31, 2007

Listing Status #2


Dustin's MELD score did increase to 23.
MELD lab results are as follows:
Sodium 138
Creatinine 1.0
Total Bilirubin 14.0
Albumin 3.5
Ammonia 28
INR 1.8

The above information is the most current. Big Bird is now #2. He is getting very anxious & nervous. This is something that has been needed and wanted for a long time, but it is also very scary, cause you never know just how you might react to any of it.

His hospital quilt is almost done. Just have to make a final decision on the back. We got one hospital gown sewn and put through the wash, gotta pull it out of the dryer and see what if any changes need to be made before making the others.

The above pic is from July 19, the day before his ERCP. It almost looks like two siblings that like each other ;-)

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***BREAKING NEWS- Big Bird had his Liver Transplant on Wednesday December 12, 2007***

Adventures in Big Bird's Liver World is an account of the daily adventures, trials, frustrations and workings of living with PSC. My brother, aka Big Bird, was diagnosed with PSC in 2000, after battleing UC for many years. He was listed for a transplant in May 2007. We now await the infamous "call". In the mean time, this is where we vent, poise questions and ramble about life, doctor appointments, illness, good days & bad days.