So Big Bird had a pre-transplant clinic appt. on Wed. He left very frustrated. His MELD score is 21. He is no longer #1 on the list, he is actually #3. Apparently 2 other people got sicker than him. Not that I don't understand this, it is just frustrating. I belong to the PSC Support Group on Yahoo-I really don't know what I would do without that fine bunch of people. I posed a question to the group-asking if the transplant centers kept you updated on your listing status. The general consensus was that no they did not.
I know that if he is to get a liver transplant, it will be when the time is right. I truly believe Heavenly Father's plan is much greater. I am comforted that I know this. It is just a frustrating situation to be in.
We are tethered to an imaginary leash-waiting and wondering. But at least we have humor, sarcastic and dry as it may be-but it is there. We have faith, that things will work out the way they are meant to. We have family-whom we yell at, love, cry with and hug. With all this I say Big Bird has it made for whatever the outcome may be!
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