We made it San Antonio

We made it to San Antonio........

We met with the Transplant Surgeon yesterday. They are going to evaluate Big Bird for Transplant. His nurse coordinater will be calling us within the next couple weeks to schedule the evaluation. This will take 3-4 days. Out-patient basis. He has a perliminary MELD score of 21 (based on blood work from December), but after being in the hospital and pumped full of IV antibiotics, his MELD dropped to an 18 based on the blood work done Friday morning-but they do acknowledge that the score lowered because of the antibiotics-fun stuff.....After all the evals and all is done, we are looking at possible listing for transplant in April or May....

The surgeon was very optimistic-which was assuring for both Big Bird and my mother. But there is a chance he could get really sick while waiting. Ah fun....But we will keep our fingers crossed, and keep the prayers going.

Just wanted to post an update that the appointment went well and we are on our way to what we have waited years for!!!!!!!

Home

HOME!!!!!!

Big Bird was released from the hospital around 7pm tonight. He is home, resting and preparing. We meet with the Transplant Surgeon tomorrow morning for a consult. I will post when we get home......

Hospital visit again....

Hospital visit again..........

Big Bird is in the hospital. He started with low grade fevers last night. So after dealing with that off and on for several hours last night we headed to the ER at 11:30pm, I left the ER at 6:45am. They admitted him. There is an infection, just not sure what and where, as his blood tests are "normal" for him. Just the fluctuating temps. Frustrating for him, but for us as well......

The doctor will be back again to check on him. He was experiencing some tenderness in the right quadrant area-something new, but not necessarily anything...we hope!!!! No signs of ascites-good!!!

Will post more when we know more. They are pumping him with IV antibiotics and fluids. And of course his normal doc is out of town. And again-he gets sick on Tuesday-what is with Tuesday?????????

Medicare Effective!

Well we are officially into Medicare. However, the joys of working with State Aid programs SUCKS. We filled out ALL the appropriate paperwork. We sent in ALL the appropriate paper work on time. And yet the benefits are not there (mind you we got a letter telling him what he was approved of, and when the benefits will be available). Texas Health & Human Servics "doesn't know why benefits have not been released". Maybe because they don't know how to never mind, that wouldn't be nice to say......I am trying very hard this year to not say mean things....it is very hard......

We are anticipating the consult with the Transplant Hospital. Nerves are very frayed and on high alert. So much about Big Birds future will depend on this visit.....fun stuff!

Will post when we have details regarding the appointment.....