Wednesday, November 10, 2010

Holy Moly

No updates in over a year! So sorry!

We lost our father to cancer last December. We were fortunate enough to fulfill his wishes and spread his ashes in the beautiful Red Fish Lake area of Idaho in August.

Big Bird is doing well liver wise. Having some kidney number concerns-but since he broke his arm last month take a dive down his stair case-they are holding off and trying Rapamune again. I am not thrilled with this choice...so I think I may attend my first clinic appointment in a year with him on his next trip.

Big Bird is a healthy weight and looks remarkably better...I can hardly believe he is approaching his 3rd year (or re-birthday as called in transplant circles) next month.
***BREAKING NEWS- Big Bird had his Liver Transplant on Wednesday December 12, 2007***

Adventures in Big Bird's Liver World is an account of the daily adventures, trials, frustrations and workings of living with PSC. My brother, aka Big Bird, was diagnosed with PSC in 2000, after battleing UC for many years. He was listed for a transplant in May 2007. We now await the infamous "call". In the mean time, this is where we vent, poise questions and ramble about life, doctor appointments, illness, good days & bad days.