Wednesday, May 23, 2007

elephant man

Elephant Man has made an appearance.

Well not really, but boy do I like to tease Big Bird! New Symptom-swollen ankles and legs, with the added finesse of pain and tightness. Good times! LOL. Suddenly Tuesday afternoon, Big Birds ankles and legs swelled up. Now this wouldn't be so noticeable if he were not such a bean pole. But none the less it is. Put a call into the doctor, they said to keep the feet elevated, and he did all night long.

This afternoon took Big Bird in for an ultrasound on his legs-they wanted to rule out blood clots-and they did. NO blood clots found (thank goodness). But the mystery remains why all of the sudden? He does not have high blood pressure, his heart is in tip top shape-so we chalk it up to the stinky liver disease-PSC. It is after all a side affect.

He also had his routine blood work done last Friday (May 25, 2007) they got the blood work back and his MELD score jumped to 28 since his last blood draw April 30, 2007. So they want another draw, we are waiting to hear from the transplant hospital for orders. After they do this, and his MELD is the same, he will be bumped up the list to #3 in his blood class. WOW now that is a scary thought!

Tuesday, May 01, 2007

LISTED

Listed!!!

After years of waiting and wishing. It is finally here! Big Bird is LISTED!!!!! He has a current MELD score of 20. He is 6th on the waiting list for his blood type (A+).

It is bitter sweet. You wait and wait for this, then it comes, you take a deep breathe, and then WAIT. So many people die waiting for an organ transplant, but so many people live because they get the gift of life. Bitter Sweet!

So, for my non humorous post today, I encourage everyone to consider being an organ donor. You never know who or how many lives you could save, by simply donating your organs. Talk to your family about-pray about it. For more information on organ donating you can visit http://www.organdonor.gov/.
***BREAKING NEWS- Big Bird had his Liver Transplant on Wednesday December 12, 2007***

Adventures in Big Bird's Liver World is an account of the daily adventures, trials, frustrations and workings of living with PSC. My brother, aka Big Bird, was diagnosed with PSC in 2000, after battleing UC for many years. He was listed for a transplant in May 2007. We now await the infamous "call". In the mean time, this is where we vent, poise questions and ramble about life, doctor appointments, illness, good days & bad days.