FDA Alert

My trusty Yahoo PSC group set in the latest FDA alert. It just happens to be on Rapamune. The anti-rejection medication they had switched Big Bird to back in February. Apparently it has caused issues in kidney patients that were switched from some other anti-rejection to Rapamune.

If you are taking another anti-rejection medication and your doctors want to switch you, PLEASE question them until all your concerns are answered.

You can read the full FDA alert here.

Good News....sad news

Big Bird is getting better. He seems to be responding well to the drug therapy. His blood works has shown improvement each week and the jaundice is going away. He goes back in 2 weeks for more blood work. The transplant team is hopeful that the damage caused to the liver during this rejection will repair itself, but only time will tell us.

On Friday, June 5, I got a phone call my our dad. I realize we have had a very strained relationship with him for several years. But he is still our father. He called to let me know that the doctors have diagnosed him with lung cancer. My aunt, his sister died from lung cancer just 1.5 years ago. I'm still reeling from this news. He was going to see the specialist today and is suppose to call when he has some more news to report.