My trusty Yahoo PSC group set in the latest FDA alert. It just happens to be on Rapamune. The anti-rejection medication they had switched Big Bird to back in February. Apparently it has caused issues in kidney patients that were switched from some other anti-rejection to Rapamune.
If you are taking another anti-rejection medication and your doctors want to switch you, PLEASE question them until all your concerns are answered.
You can read the full FDA alert here.
2 comments:
Wow, Tiff. It's been a long time since I visited. I'm sad to see that he is having such a hard time. Hopefully everything turns out fabulously.
I too thought that we were done with all this rigamarole, but no. Life is just hard most of the time, and then it is really, really hard the rest of the time. Ride the waves, and keep faith.
Hello Tiffany,
I'm sorry that you two have to go through a tough time. I am sending my prayers to you two and your father.
I'm Hua, the director of Wellsphere's HealthBlogger Network, a network of over 2,000 of the best health writers on the web (including doctors, nurses, healthy living professionals, and expert patients). I think your blog would be a great addition to our Network to share your experience. I'd like to invite you to learn more about it and apply to join at http://www.wellsphere.com/health-blogger. Once approved by our Chief Medical Officer, your posts will be republished on Wellsphere where they will be available to over 5 million monthly visitors who come to the site looking for health information and support. There’s no cost and no extra work for you! The HealthBlogger page (http://www.wellsphere.com/health-blogger) provides details about participation, but if you have any questions please feel free to email me at hua@wellsphere.com.
Best,
Hua
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